Plasma of Hope

Plasma of Hope

We Advocate For People Living With Sickle Cell
Disease And Thalassemia

Plasma Of Hope is working in partnership with NHS Blood and Transplant (NHSBT) to increase The number of Blood Donors from The African and Caribbean Ethnic groups.

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Plasma of Hope helps register 80 new blood donors during the "What's Your Blood Type" event at Walsall Manor Hospital.

About plasma of hope

Our Aim Is To Make The Lives Of People Living With Sickle Cell Disease Easier

Plasma of Hope is a UK registered charity supporting individuals that are living with Sickle Cell Disease or other related illnesses. We understand the struggles individuals face who are living with sickle cell. We understand the frustration of not being able to do everyday chores or enjoy certain life experiences, and our mission is to alleviate some of those struggles.

We help people with sickle cell avoid hospital admissions which plays a very big part in their mental health. We campaign to help raise awareness of sickle cell disease in the wider community, to help educate, and where possible influence others to understand and adapt where they can, creating a better world for everyone.

We advocate for people living with genetic blood disorders such as Sickle Cell and Thalassemia, and survivors of associated complications including stroke and other health issues resulting to disability. We also help their carers, and those in their immediate support network.

Our area of operation covers Walsall, Dudley, Wolverhampton and Sandwell in the West Midland of England.

Befriending & Wellbeing Support

We sensitise our service users on home remedies and lifestyle choices to help them prevent illnesses which could lead to hospitalisation. Given the current constraints of social distancing, consultation sessions are delivered via video conferencing.

Assistance With Everyday Living

We coordinate volunteers to pick up medications, help with shopping, and also provide transport for medical appointments. We assist with home chores such as cleaning and laundry.

Assistance With Everyday Finances

We provide financial assistance to help with the purchase of household appliances to help people with Sickle Cell disease live a more comfortable and pain-free life.

Assistance With Employment And Training

If you are struggling to find work due to your disability or your currently job puts more stress on your condition, We can support you with searching for better work opportunities and provide grants for training for jobs that are less stressful.

Campaigning

We organise sensitisation and awareness campaigns to help improve the knowledge and education around the impacts on individuals living with genetic diseases, and how society can adapt to make life more normal for suffers.

Blood Donor Registration Campaign

Give Blood, Save Lives

Sickle cell disease is the most common inherited genetic disorder in the UK. Most people living with the condition require regular blood transfusions. Plasma of Hope is currently working in partnership with NHS Blood and Transplant (NHSBT) to increase the number of blood donors from the African and Caribbean ethnic groups. People with sickle cell disease have regular blood transfusions. Currently, more Black donors are needed due to the high demand for some rare blood types common in people of Black heritage Black donors provide the unique blood Ro subtype which is in high demand due to the number of people with sickle cell disease in the UK. One blood donation can save 3 lives in just 1 hour.

Regular exercise is healthy for everyone, including people with sickle cell disease (SCD). People with SCD should keep exercise mild or moderate and take regular breaks if needed. We are currently running an exercise wellbeing project where we invite our users to get active. Physical activity has a huge potential to enhance one’s wellbeing. We engage with our users in the comfort of their homes via zoom and give them the opportunity to get active at their own pace. We work with a personal coach to provide this very low intensity aerobic exercises best for people with sickle cell disease. It also gives those living the condition to come together on a platform and share their experiences, gain skills from the personal coach to best manage their condition by learning simple exercise techniques that help with blood circulation.

Plasma of Hope is delighted to introduce our Befriending Services, a heartfelt initiative aimed at supporting individuals who are living with sickle cell disease. This service is graciously funded by the National Lottery Reaching Communities Fund.

What is Befriending?

Our Befriending Services involves pairing individuals living with sickle cell disease with compassionate volunteers who are committed to offering emotional support, companionship, and a listening ear. Our volunteers are specially trained to understand the unique challenges faced by those living with sickle cell disease and are here to stand alongside them in their journey.

Services Offered:

Regular Phone Calls: Our befrienders make regular phone calls to check in, chat, and offer encouragement.
Home Visits: For those who prefer face-to-face interaction, our befrienders can make home visits, providing companionship and moral support. Please note that home visits are conducted following all necessary health guidelines to ensure the safety of both parties.
Mental Health Support: Living with sickle cell disease can be mentally challenging. Our befrienders are trained to provide mental health support, helping to combat feelings of isolation, depression, and anxiety.
Information and Guidance: Befrienders also provide information on managing sickle cell disease and can help connect individuals with additional resources and support.

At Plasma of Hope, we believe that no one should face the challenges of sickle cell disease alone. Our Befriending Services aims to create a warm and supportive community for those living with this condition. Through genuine connection and heartfelt support, we endeavor to bring hope and improve the quality of life for individuals with sickle cell disease.

We are working in partnership with the NHS Black Country Integrated Care Board to raise awareness of breast cancer among African Caribbean women. We engage the community to come up with ideas and ways in which the NHS can increase earlier diagnosis of breast cancer in African and Caribbean Women. According to Cancer Research UK and Public Health England, black women in England are nearly twice as likely as white women to be diagnosed with advanced breast cancer. Our campaign involves sensitising women on the importance of early diagnosis and encourage African and Caribbean women to attend screenings and recognise early signs of breast cancer.

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Partners in Healing: Plasma of Hope and Pf...

29 Jun

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Partners in Healing: Plasma of Hope and Pf...

As part of our advocacy efforts, Plasma of Hope has