Albertine and Maureen Kamba
Sickle Cell Stories · Then and Now
Albertine and Maureen Kamba
Albertine and Maureen speak as mother and daughter, and as two people living with sickle cell at different stages of life.
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Their story
Albertine describes learning to understand her own body while navigating care in Congo, France and the UK. She stresses the value of recognising early signs of a crisis and speaking up when care does not fit the person in front of the clinician.
Maureen brings a younger perspective: the disruption to friendships, education and plans for work, and the difficult move from children’s services into adult care. Together they show how sickle cell is lived within a family, and why support needs to reach beyond hospital treatment.