Heritage, health and lived experience
Sickle Cell Stories: Then and Now
A new Plasma of Hope project sharing lived experience, community memory and clinical insight around Sickle Cell Disease across generations.
About the project
Real stories help people understand what statistics alone cannot show.
Sickle Cell Stories: Then and Now brings together voices from people affected by Sickle Cell Disease, families, carers, clinicians and community partners. The project is being created to preserve personal experience, improve public understanding and show how care, advocacy and identity have changed over time.
Project centrepiece
The Sickle Cell Stories booklet
The project booklet will sit at the heart of this page, bringing together selected stories, reflections, project context and acknowledgements in one accessible digital publication.
The final accessible booklet will be embedded here when the project outputs are ready to publish.
Voices from the community
Personal stories will lead the experience.
Video, audio and written testimony will be added here as the final media is confirmed. Each story will be presented with care, consent and accessibility in mind, including captions or transcripts where needed.
Video stories
Short captioned interviews will appear here once the final video files are ready.
Audio reflections
Audio clips and transcript links will be added for visitors who prefer to listen.
Written memories
Selected quotes and written contributions will be shared when approved for publication.
What the project will include
A growing record of community knowledge and experience.
Clinician perspective
Clinical reflections will help connect lived experience with care, diagnosis, treatment and support.
Then and now timeline
A visual timeline will show how awareness, treatment and community support have developed over time.
Project images
Approved photographs and visual material will be added to help visitors connect with the people behind the project.
Partners and thanks
The page will recognise contributors, community partners, funders and everyone who helped make the project possible.
Accessibility and licence
Created to be accessible and easy to share.
Project materials will be prepared for accessible digital use, including descriptive image text, captioned video, audio transcripts and a screen-reader-friendly booklet. Licence and credit information will be shown alongside the final project outputs.
