Jasmine Conteh
Sickle Cell Stories · Then and Now
Jasmine Conteh
Jasmine tells the story of raising a daughter with sickle cell and learning to advocate for her care.
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Their story
Her daughter’s diagnosis brought shock and questions that Jasmine had not expected to face. As her daughter grew, managing pain meant making decisions quickly at home, in ambulances and in hospital. Jasmine describes how difficult that can be when local emergency staff have limited experience of sickle cell.
Travelling for specialist children’s care adds cost and exhaustion to an already frightening day. Jasmine values community support for families who may otherwise feel isolated or reluctant to speak openly about the condition.