Marie Carmen Watre
Sickle Cell Stories · Then and Now
Marie Carmen Watre
Marie Carmen reflects on more than two decades of caring for a daughter with sickle cell.
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Her daughter was diagnosed through newborn screening in 2004. Marie Carmen remembers the shock of that news and the gaps in guidance during the early years, when she needed someone to help her understand what came next.
She describes care that has varied between teams and places, including times when her daughter’s pain was not taken seriously. The move from children’s services to adult care is a particular concern. Her account calls for better understanding among general healthcare staff and steadier support for young adults.