Marie-Claire Kofi
Sickle Cell Stories · Then and Now
Marie-Claire Kofi
Marie-Claire founded Plasma of Hope from lived experience as well as a determination to change care for others.
Listen to the interview
Their story
In her interview she discusses the lasting impact of sickle cell and a stroke, and the work of rebuilding life after serious illness. She knows how easily pain can be doubted and how abruptly support can change when a young person moves into adult services.
That experience shapes the charity’s work with families and its call for better clinical understanding. Marie-Claire wants the stories in this project to preserve people’s voices and give decision makers a clearer picture of what care feels like beyond policy and statistics.