Martin Rose

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Their story

He speaks about the importance of his mother’s care, and about how unevenly other relatives and friends understood what he was going through. His interview also points to the wider effects of sickle cell that can be missed when clinicians have little experience of the condition.

Martin found value in sitting with others who lived with sickle cell, sharing food and learning from each other rather than staying apart. His advice is to keep raising awareness and to adapt through the changing seasons of life.