Seanasteff Kwah
Sickle Cell Stories · Then and Now
Seanasteff Kwah
Seanasteff reflects on moving from children’s care to adult services while living with sickle cell.
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Her interview describes times when staff relied on textbook assumptions instead of listening to what she knew about her own body. She also speaks about how pain, repeated admissions and uncertainty affect mental health, a part of care she feels is too often left aside.
Peer support has offered understanding that formal services have not always provided. Seanasteff wants more individualised care, stronger mental health support and greater awareness of sickle cell in everyday clinical practice.